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Ő Nagy-Britannia legfiatalabb demens betege

Szemlézte: Pöltz Ágnes

2018.10.22. 09:59

A demenciáról

Metro

Ő Nagy-Britannia legfiatalabb demens betegeEgy 33 éves brit édesanya a legfiatalabb beteg Nagy-Britanniában, akit valaha demenciával diagnosztizáltak. Rachel Potter csupán 31 éves volt, amikor az orvosok megállapították nála az általában idősebb embereket érintő betegséget. Most, két évvel később Rachel naponta két alkalommal látogatják ápolói és ma már csak segítséggel képes írni vagy járni.

Édesapja, Kevin Potter elmondta, hogy szívszorító látniuk a lányuk változását. Rachel régebben életvidám, aktív fiatal nő volt, aki nagyon szerette a munkáját és barátait. Az egész világot beutazta. Ma azonban beszűkült a világa, kevés barátjával, családtagjaival és a hivatásos ápolókkal van rendszeres kapcsolatban. 


Rachel - aki egy nyolcéves gyermek egyedülálló édesanyja - már nem tud dolgozni, vezetni vagy főzni. Azt követően diagnosztizálták nála a demenciát, miután hozzátartozói aggasztónak találták hirtelen feledékenységét.


Az orvosok azt is elmondták Kevnek, hogy Rachael, aki Gerstmann-Sträussler-Scheinker-szindrómában, egy a központi idegrendszert érintő betegségben szenved, hogy a nő a legfiatalabb beteg az országban ezzel a diagnózissal. 

Ő Nagy-Britannia legfiatalabb demens betegeUgyanakkor Rachel édesanyjánál is ez a szindróma áll fent, nagyapja pedig hat hónappal azután hunyt el, hogy nála is azonosították a betegséget. Azt, hogy Rachel, gyermeke, Brokke is a betegség hordozója-e, csak 18 éves kora után tudhatják meg, amennyiben a kislány beleegyezik a vizsgálatba. Kev szerint egy időzített bomba az egészségi állapota. Az egyébként a feleségét is gondozó férfi hozzátette, hogy az állapot olyan, mint egy hullám: rossz és jó napok váltakoznak.


A család nemrégiben közös nyaralásra ment, ahol Rachael úgy döntött, hogy egyedül sétál el a közeli boltig. Apja azonban fél óra elteltével, mikor a lánya még nem tért vissza, aggódni kezdett. Végül két óra keresést követően a biztonságiak találták meg. Rachelt nagyon felzaklatta az eset, hiszen mint kiderült, el is sétált a szállásuk előtt anélkül, hogy felismerte volna. Kev több olyan esetre is emlékszik, mikor lánya egyenesen elment a parkoló autójuk és a benne ülő szülei mellett az utcán.

 

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